Helpful Links
Alzheimer's Disease, Parkinson's Disease NS Hospice Care Related Web Links
Alzheimer's Association
http://www.alz.org/
The Alzheimer's Association has a national network of chapters that provide programs and services to persons with Alzheimer's disease, their families and caregivers, and health care professionals.
2010 Alzheimer's Report
Alzheimer's disease is thought to make up somewhere between 60 and 80 percent of people with dementia. The annual report from the Alzheimer's Association has the latest facts and figures about the disease. Click on the link below to read the full report:
2010 Alzheimer's Facts and Figures
Alzheimer Europe
http://www.alzheimer-europe.org/
We are a Non-Governmental Organization aimed at raising awareness of all forms of dementia through coordination and cooperation between Alzheimer organizations in Europe, as well as organizing support to the sufferers of the disease and their careers. Site is also arranged in 11 different languages.
American Association for Geriatric Psychiatry
http://www.aagponline.org/
The AAGP is a national association representing and serving its members and the field of geriatric psychiatry. It is dedicated to promoting the mental health and well being of older people and improving the care of those with late life mental disorders.
The Cognitive Neurology and Alzheimer's Disease Center Home Page
http://www.brain.northwestern.edu/
The CN-ADC is a multidisciplinary organization dedicated to the following pursuits: Conducting research to discover how the brain coordinates mental functions such as memory, language, attention, and emotion; transferring the benefits of this research to patients with brain diseases that impair cognitive function; and training researchers and clinicians who want to work in this field.
The Alzheimer Page (Washington University)
http://alzheimer.wustl.edu/
The Alzheimer's Disease Research Center (ADRC) Washington University School of Medicine in St. Louis, MO researches various aspects of Alzheimer's disease and related brain disorders.
National Parkinson's Foundation, Inc.
http://www.parkinson.org
Information and resource guide for Parkinson's patients and their families.
The Arlette Johnson Young Parkinson's Center
http://www.apdaparkinson.com/youthpd.htm
The average age of diagnosis is 60. However, 10 - 20% of persons with PD develop it before the age of 50. About half of these are diagnosed before the age of 40.
National Association for Area Agencies on Aging
http://www.n4a.org/default.cfm
N4A's mission is to help older persons and persons with disabilities live with dignity and choices in their homes and communities for as long as possible.
Assisted Living Federation of America (ALFA)
www.alfa.org
ALFA is a site dedicated to professionally operated assisted living communities for seniors. Their member-driven programs promote business and operational excellence through national conferences, research, publications, and executive networks. ALFA works to influence public policy by advocating for informed choice, quality care, and accessibility for all Americans.
National Hospice and Palliative Care Organization
www.NHPCO.org
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.
California Hospice and Palliative Care Association
www.Calhospice.org
The California Hospice and Palliative Care Association (CHAPCA) is a not-for-profit organization that represents hospice and palliative care providers; Residential Care Facilities for the Elderly; and healthcare professionals in California and Nevada.
California Association for Health Services at Home
www.cahsah.org
CAHSAH is dedicated to being the preeminent source of advocacy, education and information reflecting the full diversity of the home care industry. The California Association for Health Services at Home is an advocacy component for the health care delivery system. Their purpose is to promote quality home care and enhance the effectiveness of their members.
My HealtheVet
www.myhealth.va.gov
My HealtheVet is VA's award-winning online Personal Health Record. It offers Veterans anywhere, anytime Internet access to VA health care. Launched nationwide in 2003, My HealtheVet is the gateway to web-based tools that empower Veterans to become better partners in their health care. With My HealtheVet, America's Veterans and their caregivers access trusted, secure, and informed health and benefits information, at their convenience.
National Private Duty Association
http://www.privatedutyhomecare.org
The National Private Duty Association (NPDA) is the nation's first association for providers of private duty home care, which includes non-medical home care services.
National Association of Professional Geriatric Care Managers
www.caremanager.org
This is the founding organization for Professional Geriatric Care Managers and has information both for professionals and families
Family Caregiver Alliance
www.caregiver.org
This national foundation supports the needs of family caregivers with the mission to give a public voice for family caregivers.
California Assisted Living Association
www.caassistedliving.org
The California Assisted Living Association (CALA) is the only association solely representing Assisted Living providers through the state of California. CALA is an organization devoted to the betterment of Assisted Living by providing Leadership to Assisted Living providers and other stakeholders in the Assisted Living field, advocacy to protect the interests of providers and the consumer-focused service they provide, education to support the provision of high quality programs and services.
Mesothelioma Center
www.Asbestos.com
The Mesothelioma Center is committed to providing the latest, up-to-date information to their visitors in the hopes of spreading awareness about the dangers of asbestos cancer. Mesothelioma symptoms do not develop until this period. A mesothelioma patient’s prognosis, or the probable course and outcome of a disease’s influence on the body, is influenced by numerous factors. Since a mesothelioma diagnosis often occurs once the cancer has progressed to later stages of development, mesothelioma prognosis is typically poor.
Valley of Life
www.valleyoflife.com
Valley of Life has been designed to be a safe place to keep and cherish the lives and memories of loved ones. Valley of Life helps families pay tribute to those that they have loved and lost. Sharing memories, pictures and stories with others is such a powerful way to heal. Valley of Life has grown tremendously and it is now one of the largest online resources for end of life care.
FOR FAMILIES: Learn about Assisted Living Referral Agencies through the brochure below.
